Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mazen M. Dimachkie!

Here at the Autoimmune Registry, we believe that sharing stories is important for bringing awareness to autoimmune diseases. The story below is from one of our registrants, Emily, who kindly allowed us to share her story.

This past June, a team of international researchers, led by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), uncovered a novel mechanism by which myositis autoantibodies contribute to disease progression.

Autoimmune hemolytic anemia (AIHA) is a condition where the immune system mistakenly destroys red blood cells, leading to anemia. This can occur in warmer or colder temperatures depending on the type of AIHA a patient has. Recognizing the symptoms of the disease is crucial for early diagnosis and effective management.

Fatigue is a common symptom among several autoimmune diseases and can, at times, interfere with daily activities. One autoimmune disease that has fatigue as a common symptom is myasthenia gravis.

September is Alopecia Awareness Month! Alopecia occurs when the immune system attacks hair follicles and causes hair loss, usually affecting the hair on one's scalp or face.

Inflammation caused by lupus can affect many different body systems such as the skin, kidneys, blood cells, brain, lungs, and heart. Because of the complexity of the disease, lupus has been difficult to study.

Although Long COVID continues to be a mystery, we are slowly beginning to understand more about the disease as new research has identified antibodies associated with Long COVID symptoms.

A Stanford Medicine study recently uncovered a new molecular link between gluten exposure and intestinal damage.

For patients with autoimmune encephalitis, the onset of disease can be very rapid, occurring over a few days, or more slowly over the course of weeks to months. If left untreated, the disease can quickly become serious and lead to coma or permanent brain injury.

Over 1.5 million people in the U.S. are affected by lupus, and the cause of this autoimmune disease remains unclear. However, the latest discovery of what may be the cause of lupus could potentially lead to new treatments that can reverse the disease.

Previous research on people with primary Sjögren’s (pSS) linked changes in one's oral microbiome to low salivary secretion, however, few studies analyze the relationship between oral microbiome and dental caries in those with pSS.

While studying a 67-year-old woman with symptoms of unsteadiness (ataxia), tremors, and difficulty speaking, researchers identified an autoantibody that causes B12 deficiency in the brain and results in neurological symptoms.

Researchers at the Francis Crick Institute, University College London, and Imperial College London have identified a new biological pathway critical in driving inflammatory bowel disease (IBD) and other related conditions such as Crohn's disease and ulcerative colitis.

We welcome our newest network member, Living with IgG4-Related Diseases, a global and private Facebook group with over 2,400 members of which the majority are patients, caregivers, and allies.

Alopecia areata (AA) is an autoimmune disease that mistakenly attacks hair follicles and leads to hair loss. It affects nearly 7 million people in the United States.

In autoimmune diseases, many conditions share similar symptoms as well as similar treatments. Off-label drugs are often used to treat autoimmune diseases for which they were not originally approved.

In one of our previous newsletters, we discussed the psychological and neurological impacts of autoimmune diseases, in that some patients with autoimmune conditions like lupus and rheumatoid arthritis may experience neurological conditions that tend to be overlooked.